Chemo is done! All went well today, the ride home was rough. She slept for several hours after getting home and woke up hungry!
Thanks for all your thoughts and prayers this week.
We're waiting to hear from Dr Modak to schedule scans. Morgan and I should go up in June for them.
Same clinic, same chemo, same yucky feeling, but a better (maybe even good) mood for Sparklyflower made the day much easier for her!
I think having a night without the port access, coupled with the fact that it's the end of the week helped Morgan get through the day today in brighter spirits. She eating good and staying active in the evenings.
Last day tomorrow!
Today was a better day for Morgan. Clinic went well, although she wouldn't talk to the nurses or doctor, they understand these kids have some weeks that are worse than others. They (the doctors and nurses) try to get her talking and keep a positive and upbeat attitude even when the patient doesn't!
Morgan's feeling good now, designing outfits in her room.
She requested to have her medi port de-accessed after chemo today so she can get a 'real' shower and sleep without having it sticking out of her chest tonight. We followed her wishes.
Thanks for checking in.
We're home from chemo, today was easier. Since Morgan leaves her medi port accessed all week, that hurdle was passed. She didn't feel well enough for school but went willingly into clinic this morning.
She made us work for it this morning, teasing and keeping it silly and light, I had to make promises of movies, etc, before she gave in to allow herself to get hooked up for chemo.
We watched a movie, laughed and talked.
When the infusion was done, we were discussing tomorrow's appointment time with the nurse, and Morgan chimes in, "how about never?" She smiled while saying this, but I think it's her way of letting us know she doesn't like it. We don't like it either baby girl, trust me.
So, much happier with today's outcome. We're napping now after a big lunch.
The past three weeks have been filled with fun.
Today, we started cycle 7 of irenotecan (since 2nd relapse) in Tampa clinic.
Morgan had a hard time this morning. She didn't want to go get chemo. Once we were there, she gave us a difficult time getting her mediport accessed. She is just sick of it. We talked for a while after she was accessed and waiting to start chemo. The anticipation of how she knows she'll fell once chemo starts was just too much for her this morning. It makes her feel terrible inside and out. It's very sad and not easy to explain.
She was only sick (vomiting) once at clinic and slept the entire drive home.
She's feeling good and eating now after a four hour nap. I took one, too.
Hope the next four days run a little more smoothly.
Today, Ally is eleven!! Happy Birthday to our sweet girl!
Chemo is done for the week. Today's infusion went by quickly, Morgan was happy to be done and get out of clinic.
We have three weeks off, then chemo again (round seven since second relapse) on May 14th.
Scans will follow in June.
Thanks for checking in!
This afternoon Morgan is cleaning her room! She is eating well and resting some.
She has said a few times today "I hate getting chemo," I think it's mostly boredom. There is some waiting at Tampa clinic between signing in twice, getting blood pressure and temperature checked and waiting for the pharmacy to make and bring the chemo.
We usually watch a movie once we get into the infusion room. It is quiet and slow going.......we are thankful to be home in our own beds at night, though!
Two more days!
Morgan is feeling good! She's kept up her appetite and hasn't had any complaints.
Thanks for checking in on her.
I'll update again tomorrow.
This week's chemo is going smoothly so far. We are home now, Morgan is napping on the couch and so am I!
She hasn't complained of any side affects yet, hoping for an event-free week.
Please keep the Rathbone family in your prayers.
I'll update more tomorrow.
This has been a long week! Morgan is doing well. She's come home a little sick these last three days. After a long nap and a late lunch she feels better.
We get two weeks off of treatment. Her next round of chemo starts April 16th.
All results from scans are in; spot is still there in arm, less intense. CT, MRI and urine markers are negative, bone marrows are negative for NB. The chromosome abnormality is still low at 1.8.
Thanks for checking in!
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